It’s been a few days since my last Roger update, so here goes another.
Summarizing the last two days in two words? This sucks.
Roger was making incredible progress through the weekend. His voice was strong, he entertained a series of visitors, and he was up and around often. It seemed like the worst was behind us, and that he wouldn’t need the epidural after all — his lung was getting stronger and he was utilizing more capacity without more extensive pain treatment.
Turns out his clotting factor never did right itself enough to allow the epidural, which was no big deal.
Monday was a slight decline, which I attributed to all the activity on Sunday.
Today, Tuesday, things are Not Good. But I can’t put my finger on why. He has slept all day, is resigned and doesn’t seem to care about anything — walking, eating, talking, even watching the Red Sox. He feels nauseous (a side-effect of the narcotics) and gets frequent headaches (also a side effect). But the latest ick, he says, is pressure behind his left eye.
The current nurse and CNA are pretty responsive. There are times, before I get here in the morning, when he’ll sit for more than an hour waiting for someone to stop the alarm on one machine or another, for help getting untangled from all the cords going into his body so he can get to the bathroom, or for someone to address the nausea/headache.
The nurse says the eye/head pain is probably nothing.
I feel like something besides the obvious is wrong. All the professionals here look at just one piece of Roger: the orthopedist comes in daily to check the collarbone. The trauma surgeon checks in daily to see how the chest tube is draining (he had to go back on wall suction, as the xray shows blood pooling in the lung again — waiting on results from the more detailed CT scan). The nurses address his pain, and the CNAs take care of his bodily functions.
But no one looks at him as a whole, as a person. Probably the headache on just one side of his head is nothing, but SOMEthing is not right. And I don’t know what to do, how to advocate, to whom to speak.